480 CASES HAVE BEEN REGISTERED

Welcome To Birth Defects

As per the World Health Assembly report in 2010 on birth defects, congenital anomalies (also referred as birth defects) affect approximately 1 in 33 infants (3%) and result in approximately 3.2 million Birth Defects-related disabilities every year. Many congenital anomalies are assumed to be caused by the interaction of gene mutations and environmental factors, the exact etiology remaining unknown.

 In the advent of diagnosis of a surgical congenital anomaly, the treating doctors and the parents are in a dilemma on how to counsel the parents regarding the outcome of the pregnancy.

 It is estimated that 276, 000 newborns die during the first 28 days of life every year from congenital anomalies, as per WHO fact sheet 2015. Moreover, congenital anomalies may result in long-term disability, which may have significant impacts on individuals, families, health-care systems and societies. The most common serious congenital disorders are heart defects, neural tube defects and Down syndrome.

The exact incidence of congenital surgical anomalies is not known due to poor documentation of the Foetuses that are aborted or are stillborn. The live born babies also travel far and wide in order to seek proper treatment. Even the World Health Assembly report in 2010 on birth defects does not mention in detail about the surgical congenital anomalies that need advice during the fetal growth and post natal treatment by a pediatric surgeon after birth. This congenital anomaly registry and surveillance program under the FeSCA project aims to help plan preventive strategies; create support systems for individuals affected by birth defects and their parents.

We invite pediatric surgeons, gynaecologists, radiologists, ultrasonologists, physicians and volunteers to join hands and help to register your patients/ your babies on this website after completion of delivery. Doctors who enrol more than 20 cases would be duly acknowledged in all correspondence and publications. The patient identity would be kept confidential. The full registration form (BDRN) will take 20 minutes to fill. The doctors registering cases would be able to access their records.

There is also a shorter form to fill and get a registration number (BDRA) especially designed for volunteers, cases still in antenatal period and busy doctors.  This one page form requires only 3 minutes to fill.  You can also contact us for antenatal counselling by filling the form and emailing us. Your contribution will go a long way in improving the health of children.

The BDRA can be completed into BDRN after 6-9 months once the outcome is known. We would be contacting the volunteers to know about the outcome later.

 

World Birth Defects Day 2016

Birth defects till today are one of the leading causes of death for infants in some countries.

Pediatric Surgeons & Birth Defects

Role of the Pediatric Surgeon in Congenital Anomalies

Aim of birthdefects.in

The aim of this website is to develop guidelines for appropriate fetal counseling for surgical congenital lesions thus benefitting human health and development.