About Us

DRIVING PROJECT (Supported by Department of Biotechnology)

Establishing Guidelines for Fetal Counseling for Surgical Congenital Anomalies (FeSCA).

Genesis of Project

In 2010, World Health Assembly report on birth defects described the basic components for creating a national programme for the prevention and care of birth defects before and after birth. This study would be an attempt to generate data on outcome of surgical congenital anomalies.

S. No. Investigators Qualifications
1
Dr. Shilpa Sharma,
Associate Professor,
Department of Pediatric Surgery,
All India Institute of Medical Sciences,
New Delhi - 110 029
drshilpas@gmail.com

MS, M Ch, National Board , PhD ( Stem Cells)
WOFAPS Fellow at Great Ormond Street Hospital, UK
Secretary, Research Section of Indian Association of Pediatric Surgeons
Past Secretary, Delhi Chapter of Indian Association of Pediatric Surgeons
2
Dr Dipika Deka,
Professor& Unit Head,
Department of Obstetrics and Gynecology,
Chief - Fetal Medicine Division
All India Institute of Medical Sciences,
New Delhi - 110 029
dpk.deka@gmail.com

MD, FICOG, FIMSA, FICMCH
WHO Fellow in Fetal Medicine at George Town University, Washington DC & ICMR Fellow in Fetal Medicine at King's College Hospital, London
President - Society for Fetal Medicine, SFM
Past Chairman - Genetic & Fetal Medicine Committee, FOGSI
3
Dr Devendra K Gupta,
Professor & Head,
Department of Pediatric Surgery,
All India Institute of Medical Sciences,
New Delhi. 110029.
profdkgupta@gmail.com
www.aiims.ac.in, www.wofaps.edu, www.ishid.net

MS, M.Ch, FAMS, Hony FRCS (Glas. & Edin.), FCS, D.Sc (h.c.) WHO (Australia)
President WOFAPS (World Organization of Associations of Pediatric Surgeons)
Past President: Indian Association of Paediatric Surgeons
Past Editor in chief: Journal of Indian Association of Paediatric Surgeons
4
Dr Minu Bajpai,
Professor,
Department of Pediatric Surgery,
All India Institute of Medical Sciences, (AIIMS), New Delhi
bajpai2@hotmail.com
Website: http://www.paediatric-urologyonline.org/;

MS, MCh, PhD, FRCS, FACS, FAMS, National Board
Fulbright Scholar (USA), Commonwealth Fellow (UK) & Raja Ramanna Fellow (Science & Technology)
Past President: Indian Association of Paediatric Surgeons
Editor: Journal of Indian Association of Paediatric Surgeons
Editor-in-Chief: Journal of Progress in Paediatric Urology
Convener: Indian & Asian Societies of Paediatric Urology

Proposed Outcome of Registry

The exact incidence of congenital surgical anomalies is not known due to poor documentation of the Foetuses that are aborted or are stillborn. The live born babies also travel far and wide in order to seek proper treatment. Even the World Health Assembly report in 2010 on birth defects does not mention in detail about the surgical congenital anomalies that need advice during the fetal growth and post natal treatment by a pediatric surgeon after birth.

This congenital anomaly registry and surveillance program can help plan preventive strategies; create support systems for individuals affected by birth defects and their parents. When developmental anomalies are detected early, it paves the way for correct diagnosis, early health intervention for the baby after birth, medical advice to help families cope with the baby’s abnormality and also to plan subsequent pregnancies. This registry will help to study the epidemiology and the outcome of surgical congenital anomalies.

There are no established guidelines for fetal Counseling for Surgical Congenital Anomalies to follow. The opinion has to be based on the preciousness of the baby, the age of gestation at presentation and presence of other major congenital anomalies. The final decision is taken by the parents.